Gracie asked that I share her latest updates with you all. Jack's decline is continuing unfortunately, and she covets your prayers.
Jan 13
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From Jan 22.
Tonight's post.
Jack Berry's Journey with ALS | Facebook
Please visit their Facebook page and if you need a good hightop Ford Van, drop them a line.
Thanks,
Dale
Jan 13
.Jack's world is even narrower now that the snow has finally arrived in Wisconsin. He lives in the living room (at least he lives in the "right" room!), eating, sleeping, watching TV from the recliner. He has shoulder pain, made worse in a bed, even the hospital bed. His voice is almost gone and eating is becoming more difficult. He gets most of his calories from his feeding tube.
Yet he still smiles and laughs and feels all the love sent to him.
Thank you on his behalf
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From Jan 22.
Todd Neva just continues to bless us with his ideas for keeping Jack going and communicating. His latest is a laser light that attaches to Jack's glasses and a qwerty chart, with words like Yes - No - Up - Down etc. so he can "talk" to me as his voice gets rougher and unclear.
Tonight's post.
Jack continues his decline. He can no longer walk nor even stand up. The last couple of days he has started to have problems with fluid in his throat. We have been supplied with more equipment; he is refusing additional oxygen. We have had the heat turned up at his request, now he bundles in blankets to keep warm as it is easier in a cooler room.
Thursday we see the neurologist again.
Dale please let people know. I know there are others who care. Also, this is an open page, just like it to see the messages, i do not have to friend anyone for them to see it
And we still have a van to sell, dropped.price.to $20,000.
Jack Berry's Journey with ALS | Facebook
Please visit their Facebook page and if you need a good hightop Ford Van, drop them a line.
Thanks,
Dale